A FUN day is being held to help raise funds for a 10-year-old Cradley Heath boy with a rare degenerative condition who was given only nine months to live at birth.

Regan Nash has mitochondrial disease MTT1 - his strain of the genetic disorder is so rare that he is one of only two people in the world to suffer from it.

A fun day is being held at Haden Cross Fire Station in Halesowen Road, Cradley Heath, on Saturday September 7, from 11am till 4pm to raise funds and awareness of the condition.

Ten-year-old Regan, of Norwood Avenue, has formed a bond with firefighters at the station and they visited him on a stay in hospital.

The fun day, which is being held during Mitochondrial Disease Awareness Week which runs from September 16 -22, will raise money to help the family buy a special bed which will prevent Regan banging his head on the wall when he suffers epileptic fits at night as well as funds to help the family make precious memories as his condition deteriorates.

There will be stalls, a bouncy castle, face painting, hook-a-duck, a tombola and raffles and more.

Anyone is welcome to attend the free event.

Regan's mum Melanie Morris said: "Regan's looking forward to the fun day. He loves the firemen and they're all coming - he's been to have a look at the fire station to see where it will be and got to go on a tour of it.

"The day is not just about fundraising, it's also about raising awareness of Mito."

Melanie, who runs the Facebook site Regan's Fight for life with Mitochondrial Disease - where nearly 2,000 followers see regular updates into how the brave youngster is doing, said Regan's condition has deteriorated rapidly.

She said he now cannot walk and tomorrow (Tuesday) will go to Birmingham Children's Hospital to be fitted with a feeding tube as doctors believe his muscles will soon be too weak for him to even swallow.

The family - stepdad Craig Lowe and siblings Timbertree Primary pupils Kai Nash and Laci Lowe - are cherishing every moment they have together as Regan's health declines.

Melanie said: "Regan has no mobility now.

"A blood test showed his body is under stress and his muscles are weakening - his organs are struggling to work now.

"It's getting harder and harder and more stressful - we are living thinking every day could be his last, but we are making the best of it and had a great weekend - we went to Sandwell Valley and Stourport and we had a wonderful time."

Charlie Gard was a high profile sufferer of Mitochondrial Disease. His parents Connie Yates and Chris Gard campaign for awareness of the condition.

The Lily Foundation is the UK's leading charity dedicated to fighting Mitochondrial Disease. It has been backed by comedian Peter Kay who has raised £34k for it and aims to find a cure.

For updates into how Regan is doing visit the Facebook page Regan's Fight for life with Mitochondrial Disease.